Should I question what the doctors say?

by Crystal
(Orlando)

This is a bit of a long story but you have to hear it all to understand what I'm going through.

I am 26 years old and when I was 13 I had surgury for scholiosis. I had a spinal fusion and went back to dancing (my childhood passion)the doctor said that was all the physical therapy I would need. After feeling the bars rub against my shoulder blades for a few years and being on pain medication I chose to have them removed at the age of 17.

Since I was still dancing the docs didn't put me in PT again, little did they foresee that same year I would be diagnosed anemic from the surgery and shortly after have an accident in class that would trigger "Juvenile RA", now preping for college and having to quit the only thing I'm good in (dance) because my rheuthmatologists first answer to me of what should I do was "well, if it hurts don't do it", I have lived that way ever since.

The next summer my doctor sent me for a glucose test and we discovered Hypoglycemia, which I treat only with dietary change. Now after changing jobs multipe times due to flare ups, pain, or lack of pay to cover medical expense my current doctor is thinking I might have periferal neuropathy because my morning stiffness is numbness too. It manifests not as pain so much until I am moved where my body comes to a very painful realization that it's all still there (do any of you experience it like that?)

After 9 years of blood testing I still do not have a RA factor which has to be the most annoying issue. Is it common for JRA to never progress to have a factor or should I be questioning the diagnosis.

Thanks for your time.