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Should I question what the doctors say?

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Feb 20, 2010
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I to have been told that I have RA and test are negative
by: Anonymous

Crystal,

I to after having surgery was told that I had RA.
And my Ra test are negative. I to have been asking Dr.'s questions with no answers just that I have Ra. One Dr. did say that I could have had a reacion to medications during surgery.

For the last month I have been going to a Dr.(MD)
that has been treating me with herbal Vitiams and herbal medication, for the swelling and energy levals.So far it has helped. I believe that our diets have all to do with our health. I just hope I'm not to late I am 52 years of age. Read all you can find and research because herbs are medicine to. But I do have more energy and less joint swelling in just 4 weeks, I am not well yet but I can tell that I am a lot better.

Jun 24, 2009
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IN PAIN DAILY
by: JANET

DO YOU THINK SHE COULD POSSIBLY HAVE FIBROMYALGIA
ALSO.
I HAVE BEEN SUFFERING FOR YEARS WITH STIFFNESS AND PAIN , DOCTORS SAY FROM OSTEO. AND FIBRO.
I HAVE BEEN TESTED FOR RHUMATOID , BUT THY SAY I DON'T HAVE IT.
I QUESTION IT, BECAUSE MY JOINTS ARE SO TENDER.
IT IS OFF AND ON DAILY, FROM MY ELBOW TO MY FINGERS, TO MY BACK OR KNEES, ALSO FEET.
I NEVER KNOW WHAT THE DAY IS GOING TO BRING.
I HAVE TO TAKE PAIN MEDS TO GIVE ME A FAILY GOOD DAY. VICADEN, IS WORKING WELL, BUT I HATE TAKING IT EVERY DAY.
JUST BARELY HIT MY KNUCKLE YESTERDAY, AND I WAS IN TEARS WITH PAIN. WHY? I WISH I KNEW IF IT IS MORE THAN ORTEO.

Sep 16, 2008
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I always tests my own theories when a diagnosis seems off.
by: Susan

Hi Crystal, I read your story with sadness. I feel your pain having to give up the thing you love most in life. Worse is not knowing if you can believe the diagnosis.

Often times symptoms mimic one disease and we get a diagnosis only to find years later that the original diagnosis was incorrect.

Reading your story made me wonder if it's possible that you are suffering from gluten intollerance.

Have you ever removed ALL Gluten from your diet for a period of 30 days? To remove all Gluten you must realize that it is often well hiden inside prepared foods and even small amounts must be avoided to test this out properly.

Gluten intollerance is very difficult for doctors to recognize. Now I'm not saying that's what the problem is, but I do believe it would be worth testing.

I know people who were close to death before finally realizing that it was simply gluten intollerance causing all the havoc in their body and once this once change was made their body returned to a healthy state.

As for your question about the RA factor not showing in your blood work, this test is not completely reliable. Some people test negative, with all the symptoms while others test positive with no symptoms.

I'm hoping others with experience living with JRA will comment.

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