Maureen Mazz

by Maureen
(Staten Island, NY)

I was diagnosed with RA about 6 years ago. Of course I was prescribed the usual methotrexate which has been increased every year. After being prescribed 8 pills once a week I started experiencing extreme side effects to the medicine. When I consulted my doctor, he told me never to be out in the sun and I would not experience the side effects.


I decided to be my own best advocate and I went to a nutritionist. I am now symptoms free and methotrexate free for about one year. The secret, gluetin. I eliminated this out of my diet, started juicing every day and stopped my medicine after two months without pain. I never told my doctor, because he told me a nutritionist could not help me. But if anyone out there is brave enough to try to cut gluetin out of their diet, you will be happily suprised. Try it what do you have to loose. No more swelling, no more nights up in excruciating pain, no more medicine. Any questions please blog me. I want everyone to have a chance at being pain free.

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Aug 26, 2015
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True information is shared NEW
by: Hinton

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May 31, 2012
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grains and gluten
by: sandra

I am 26 and being recently diagnosed I am not ready or willing to succumb to medications simply because I know this is life long. I've done tons of research and for me right now I'm focusing on diet changes and exercise changes. With all the hype about gluten and allergies or intolerances I didn't give it too much thought at first, but I'm going the extreme and am trying to first gradually go gluten free and then completely grain free- as these foods first of all have the lowest nutritional values due to our body's simple inability to break these substances down appropriately. But I encourage you to look into the inflammatory factors on these foods. While many fruits and vegetables actually contain anti-inflammatory properties, grain and especially gluten containing products (NOT one and the same) have EXTREMELY high inflammatory ratings, ex. a low rating may be -140, where as a pasta or bread are regularly in the -800s!
Additionally- KEEP MOVING! Right now my ankles are the primary source of my flare- I am am constantly stretching and moving my ankles and feet and continuing to do low impact exercises. I find some days this provides me with relief- even if only mildly.
I have not had problems with my hands or wrists...yet, however a family member due to different health reasons saw significant improvement through "rice" exercises- where she filled a plastic shoe box with rice and hid an item- first larger easier to grip (such as a golf ball) then smaller items (such as a penny or bead), and with out looking would search through the rice to find and grip the item. Obviously stretching and perhaps ice/hot packs may help and all the other things I'm sure you've looked into.

I empathize with the feeling of depression and feeling defeated. No one can truly understand, not even necessarily another person with RA. However, support is never bad, take it whenever you can!

Good luck!

Aug 30, 2011
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HELP FOR RHEUMATOID
by: sharyn

Hello fellow sufferers...
I have been diagnosed with rheumatoid arthritis and would like to know how to deal with the pain,suffering,rejection of friends and family,and the tears and pain of not being able to cope with daily life...
I can not bear this way of living and have had to cancel this wonderful holiday that my daughter and me planned as i am just not well enough to fly 23 hours and travel all around europe which was my dream..I will probably lose my flight money and i feel sad for my daughter as she wont go without me to help her with the 3 little kids,but what can i do..I would be miserable and in pain on holidays and wish i was home in my comfort zone suffering silently.
I would like to hear very much from people that have lived through this..i am on methotrexate,and arava and have some side effects of memory loss,which my family get annoyed at me,blurred vision,tingling,numbness,seedy stomach,fatigued and not wanting to get dressed and rarely answer the phone..I dont go to my groups or classes or dancing anymore...
THIS IS NOT LIVING...

GOD BLESS YOU ALL...

Aug 30, 2011
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rheumatoid
by: sharyn

Hi, I was diagnosed with rheumatoid arthritis a year ago and since then my life has gone downhill..i know longer go dancing,rarely socialise and cant be bothered getting dressed unless i have to for appointments...the specialist put me on methotrexate,prednisolone,arava,and celebrex..I have so much pain where i end up in tears as i can not open lids,jars,squeeze shampoo bottles,dishwashing liquid etc..I can hardly put the key in the door,driving is very difficult and i dont feel like eating..I am hot at night and sleep very little and the pain comes on with a vengeance at night in my hands,wrists,and shoulders..it sometimes is in my knees and feet..
most days i dont know why i am living in this world with this pain,and i use to enjoy life so much...I live alone which is hard at times as well..I dont like taking these drugs but was told if i dont i will have permanent damage and end up in a wheel chair,which is a frightening thought..can anyone help me...susan dorey is wonderful and has good advice,but every person has different experiences and i would like to hear others..
bless you all..

Apr 14, 2011
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Miracle Herb
by: Keith Grubb

My wife has recently found out she has RA. We don't get to see the Rhumatologist until May 1. General Practiioner put her on mega dose of prednisone with little effect. I read about a Chinese herb called "Thunder god Vine". I found it at a local Chinese Grocery, it was expired, but I purchased it anyway. The effects have been miraculous for my wife. Her swelling in her hands have vanished. She was in excruciating pain, now she is pain free. I have contacted a manufacturer in China, and I will be ordering in bulk soon. My goal is to make this herb more widely available to RA suffers. Do yourself a favor and do some research on this miracle. Maybe it will work for you as it has for my precious wife.

Mar 12, 2011
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for the person who just wrote REDUCE your RA MEDs and try the DIET!!!!!!!!!
by: Dawn

Hi =) you have suffered alot more then i have and if you dont mind i would really like to have someone to talk about this with because no one here understands the pain we go through and thinks im full of it because im so tired all the time and i have days i can not walk at all as the worse place its affected is my knees, feet and hands. your so young as well only 26 :(, my Boss's parners little girl she is only 10 years old i couldnt believe it she has got RA such a horrible age to start. I had pain at the age of 16 and finally a doctor found out 2 years ago i had this awful disease and im 24 now!, it took me a while to actually think much of it until i relised how bad RA is when the pain came flooding in fast and affected my job for a while but i keep reliable to the max i can. If its ok with you i can send you my msn or email if you would like to chat about it to someone if not thats totally understandable i dont normally give out emails but talking about it with someone who has it is better then someone who doesnt understand =)

Dawn

Mar 11, 2011
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REDUCE your RA MEDs and try the DIET!!!!!!!!!
by: Anonymous

I guess everything is good in moderation. Suzanne Somers has some great advice - that I believe mirrors the whole gluten free diet, etc.

But - the biologic drugs, the methotrexate, predisone, pain medications - they are all so bad for your body. I ended up with melanoma. Which is a heightened side effect for methotrexate.

I also got shingles. Nerve damage. My vision went from perfect to blurry. The nerve damage is irreversible. First notice was on Enbrel. Then my doc took me off and switched me to Orencia - but I would only make it 2 to 3 weeks while on it. Then against my desire, she said Remicade was my only next option. That is when I got shingles, lost my vision for a short period of time in my left eye. Tingling and numbness on my left side. Blurred speech. So then I went on Rituxan.

Rituxan helped but it was infection after infection. A pinch quickly turning into urinating straight blood. Antibiotics no longer working. I was practically on them monthly.

It is very disouraging to be on the medicines. That is why I have tried to go the more natural way and surprisingly (to the pharmecuetical companies out there who will not strive to find a cure - bc then where would the money be in it - and to the docs who prescribe just bc of the perks of lunches and dinners) my sed rate, crp, and mri's all have stayed the same. Not worsened. my sed rate has not spiked.

I do feel pain, stiffness and swelling, but the tests for inflammation are minimal. So who knows.....but I hope this helps someone! This is a disease that noone but you can understand. The doctors can not feel your discomfort People look at me and say YOU LOOK AMAZING, you are not sick. I go to the ER and they do not take me seriously. Then I show them I urinate straight blood - and my kidneys are starting to fail and all of a sudden it is "you poor girl."

All I can say it NEVER judge! I would not wish this disease on ANYONE.

continued...pg3

I pray the diet and moderate exercise can ward off the debiliation and destruction and hopefully increase my energy. Maybe it will work for others out there.

I am still trying to find out why I do better in cold than heat. Right now it appears it is because of the nerve damage that resulted because of the continuation of biologic drugs against my better judgement.

Does anyone else have heat intolerance? Severe onset of fatigue? Joint stiffness, redness, swelling? Blurred speech. Change in mood?

God Bless!

Mar 11, 2011
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REDUCE your RA MEDs and try the DIET!!!!!!!!!
by: Anonymous

continued.......

The first couple years are the most damaging with RA I was told. I had a doctor, who has a wife, tell me that doing a gluten free, sugarfree, no alcohol, and no night shade vegetable diet - could put the disease in remission WITHOUT medicine. Of course, I asked my RA doctor - who insisted that IT WAS NOT TRUE. She later termed my care - as I was questioning all the medicines that she was putting me on, and spending more and more nights in the ER due to the side effects of the immunosuppressant drugs.

I hestiated about the diet - as it is VERY hard. But it is recommended that you do it STRICT for one year - and slow bring some foods back in to your diet. There is the obvious risk that while transitioning from medicine to a healthy diet for RA - that damage can occur - so I believe it is a personal decision one has to make.

I wish I could say that I am fully in remission - or that my RA is gone. But I have had to take minimal medicine and do the diet as best as I can. But I still have my limitations and things that can force me into discomfort or bring on the fatigue.


Mar 11, 2011
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REDUCE your RA MEDs and try the DIET!!!!!!!!!
by: Anonymous

I was diagnosed with RA at 26 years old. I had a son 2 years earlier. Then I was pregnant with another child.

I had swelling in my feet at 2 months pregnant. The doctor said it was just because I was pregnant. The not being able to breathe (inflammed in my nasal passage) and the swelling in my feet and the severe fatigue.

Then I had seveve pain in my rib area. I found out that I had Pleurisy. I then had an abnormal reaction to the sun in just a few hours that resulted in 2nd degree burns all over my body. Then I had diarhea for a month staight. They did stool testing, and nothing.

It was then that a doctor did a colonscopy and found out that my organs were inflammed on the inside and no known cause. I told him of my hand and feet swelling. Then I was referred to a Rheumatologist who diagnosed me with RA.

Problem is, I have severe fatigue, joint pain, joint swelling and redness. Heat, unlike most people, exacerbates my disease and symptoms.


Mar 06, 2011
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Rheumatoid
by: Dawn

hi Maureen

im 24 and i was put on Methetraxate for about 6 months and had to stop as the side effects were extreamly bad, i was experencing illusions, waking up sweating and over heated, scratching, mood swings and my vison was bluring so my rheumatoligist put me on Plaquenil, i havent had any side affects so far for the last 4 months but recently the pain has come back worse. I still get effects from the methetraxate even though i havent taken them in a long time it is a very bad drug that i recommend people try not to be on this if possible, im going to try what you did and see if it words for me i really dont like taking medication but natural things i will, thanks for the advice i hope your doing very well =)

Feb 04, 2011
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Update please
by: Anonymous

Hi there,

I'm taking Embrel, which I read recently can caus cancer. Yikes. So I came across your short blog and HOPE very much that this will help.

How are you doing now? Did the gluten free diet cure you forever?

Thanks,
Jo

Feb 01, 2011
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Congratulations Maureen!!!!
by: Susan

Hi Maureen,

I bet you are so happy that you went to the nutritionist for help.

My doctors said the same thing. Diet won't make a difference and that the only treatment for RA is the medications.

Thank you for letting people know that, in fact, diet makes all the difference. The only way to stop the suffering is to get the message out there that, in fact there is MUCH we can do to heal our body.

Good luck, keep it up and remain symptom free!



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